MEDAN - A rare skin disease experienced by a 5-year-old girl named Luqyana Syasya in Medan Labuhan District, Medan City. Since birth his skin peeled off, besides that his toes and hands were severed, because of this disease.
Luqyana's father, Dedi Irawan, said that his son was born in his village in Mandailing Natal (Madina) Regency. When she was just born, at first the family found a small wound on Luqyana's leg, they thought it was a wound due to childbirth.
"The midwife was given medicine for the wound. But a week later, another wound appeared, it went up (up) to the top. There was a lump that looked like it had been hit by an exhaust, and it kept going up and up again to the head," said Dedi, Tuesday, July 6.
After the incident, Dedi, who works in a factory in Medan, invited his family to move to Medan. Precisely in Tangkahan Village, Martubung, Pasar 5 Jalan Rawa 2, Gang Sarino.
The reason for going to Medan was because Dedi was worried that his son's illness was caused by harmful substances from the river. He said, when in his village, they lived near a river.
"There was a river behind my father-in-law's house first, we lived at my father-in-law's house first, all the rivers were former mines. If it rains heavily, all the rain flows into the river," explained Dedi.
In addition, Dedi also wants his child to be treated at the maximum in a number of hospitals in Medan. Starting from Adam Malik Hospital to USU Hospital they visited. However, Luqyana's illness is getting worse.
"The whole body is (exfoliated), the teeth are broken, they are rotten. The nails have all come off. The toenails and hands," said Dedi.
From the doctor's examination, said Dedi, the second child with the disease was due to genetic factors. But he wondered why it couldn't be cured.
"The hospital doctors say it's genetic, but if you go to a skin specialist at Ringroad Street, they say it's auto-immune. But it's the same with genes, just different terms, the same disease," explained Dedi.
After repeated treatments and no change, now Dedi has turned to alternative medicine. Likewise, Luqyana's disease also did not heal.
Dedi is so sad to accept this situation, he can't bear to see Luqyana, every day enduring pain, especially when bathing.
"As long as he is bathed, he cries, it hurts," he said.
According to Dedi, Luqyana's disease also tends to be strange, when it relapses, his body is wet with sweat, then it causes itching.
"If it relapses, the whole body gets wet. When it's dry, it's dry. The effect of the medicine doesn't appear so itchy, we don't know, maybe his immune system is inside, when it's dry, it's thought to have healed, it goes up again, it reappears (wounds) ," he said.
From this incident, he hopes to get medical assistance from the Governor of North Sumatra, Edy Rahmayadi. Because, before this, he saw Governor Edy, helping treat children who have the same disease, with his son.
According to Dedi, asking Edy is part of his effort to heal his child.
"I saw social media, I saw Governor Edy Rahmayadi met brothers and sisters, then they were taken for treatment and wanted to form a team of doctors, I saw the disease was the same. I asked for help," Dedi hoped.
Previously, Governor Edy formed a special team of doctors to treat Brothers and Sisters Haikal (8) and Zakira (3). Both of them are affected by a rare disease where the skin all over their bodies is peeling so that they are often in pain.
Governor Edy said that currently the two children are undergoing treatment at the Medan Haji Hospital. Edy also suspected that the illness of the two brothers was due to the impact of mercury waste.
"But we can't talk like that, we'll see later, we'll take it to the laboratory what it is. If we look at the position of the village, maybe it's (because of mercury), that's an initial assumption, (but) we'll confirm later, the doctor's diagnosis will come later," said Edy, Monday, July 7th.
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